Christmas day I was born, big brown eyed girl with a head full of dark brown hair. I remember my momma telling me about how people always use to tell her she has such a beautiful baby, not cute, but beautiful.
I grew up with a mother, father, three brothers, two sisters, and a dog. I have an amazing family and without all of them I wouldn’t be as strong as I am today. As a child, my mother was always the one to protect me and look out for me. My father is the type of guy that if I got a little scrape on my leg, he’d make me get up wipe it off and keep going. He always kept me going at my hardest times. My sisters always gave me the best advice about everything.. well it seemed like it at the time anyways. They were and still are my role models till this day. My brothers always had my back when anyone would say anything or look at me wrong. Without all of their different roles each and every one of them played I would be an entire different person. Having that much support and being so young was the best thing for me. The one thing that my family always did was to be sure to take care of me but never treat me any different than any other kid.
As a few years went by my mother started noticing a change in my facial appearance and wasn’t sure about what was going on. I was about four years old at this point and we went to see my local doctor. My mom explained to him that she had been noticing a change, and wanted him to check it out.. well this doctor never wanted to really interact with me. He wouldn’t touch or feel my face or anything to check it out. He just started naming possible conditions that I could have had. We then went to a different doctor for a different opinion. All of the doctors that I have seen in my life have never seen this case. Usually, when you get Scleroderma you get it in your stomach area in which sadly leads to death. After seeing this new doctor, he sat there and really was interested about getting this all figured out. He was so dedicated and always kept calling back with new answers. Shortly after our appointment with him he had gave my mother a call back and told us that he is referring us to a doctor in San Francisco, California.
So here I am, age four a half.. and still left without an answer with what is going on.